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Showing posts with label secondary adrenal insufficiency. Show all posts
Showing posts with label secondary adrenal insufficiency. Show all posts

Shadows

Yesterday was not a good day.  At all.

Randall started getting sick early in the morning.  And it got worse as the day progressed.

So his illness is hitting him like it did over the summer.  A few days in the hospital and a few days at home.

His Dad took him to the ER at about 2:30 yesterday afternoon.  I was glad.  Not saying that I didn't want to be there, I did.  But I don't think I could have handled it this time around.  Watching him be so sick, especially in the ER, takes something out of me.  It fucks me up.  So I was glad to have a break from it this one time.

Didn't mean that I didn't worry any less though.

Time moved slowly and I was dreading going to pick Kaylee up from school.  I really thought she would be OK with me telling her that her Daddy had to go back to the hospital.  God, was I wrong.

I am always honest with her.  So I told her as soon as we walked out of school.

She started crying.  Big huge tears streaming down her face.

It was truly heartbreaking.  I wrapped her up in a hug.  As we walked home.

Today, I went to visit Randall.  He had a rough night.

He looked like hell.  Pale with dark, dark circles under his eyes.  He looked like a shadow of himself.

He was surprised to see me.  I had talked to him on the phone and he had told me not to come.  Told me that he didn't want me to see him like he was.  That only made me want to see him more.

He slept the majority of the time I was there.  Watching him sleep was peaceful.  He looked peaceful-- on the outside.  On the inside I know there is hurt and pain and turmoil.

During one of his little naps, I eye-spied a small pad of paper and a pen sitting on his table.  I grabbed it and started writing him a note.

I love you!  Please feel better soon... You have prayers and positive vibes coming from all over the place!  Please be strong.  Feel the strength in me & use it to help you heal.  


Love You Always & Forever, 
Your Babydoll

I didn't stay long, not like I usually do.  A little over an hour.  I didn't want to leave but he really wasn't up to visitors.

I gathered up my things, gave him kisses and left.

I hate leaving him.  I feel like I leave a piece of me there with him every time.

Not sure when he will be released.  I will keep you posted.










Good Days and Bad Days: An Update

I know there are a few of you who would like to stay up to date with Randall and his condition, so I figured I would start doing a weekly update for you.


I am happy to report that Randall has made it 10 whole days out of the hospital!  This is quite an accomplishment, considering that at one point he spent 10 days in the hospital...  We are taking things day by day.  Which is really all you can do.  It is inevitable that he will be hospitalized again.  That's just how this stuff works, at least from what we have seen so far.


Randall has good days and bad days.


I enjoy the good days.


The good days look like this:


And kinda like this:




And maybe even like this:




Then we have the evil demon days that are bad days.

I don't like the bad days so much.  These are the days that I stay on edge.  These are the days that I worry myself silly.  These are the days that I hover like a protective mother hen...

Bad days are riddled with severe pain and nausea and cause Randall to do nothing but lay in bed.
Today was a bad day :(



Then we have the really bad days that produce vomiting that is non-stop and cause us to end up here:
This was from the last time he was admitted to the hospital...

Thankfully we haven't had a really bad day in about 2 weeks...  Keeping my fingers crossed and praying that it stays that way.


But that's about all I have right now.  Thanks to everyone who has kept my little family in their thoughts and prayers!  


Have an awesome weekend!



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Pour Your Heart Out





Here I go trying to get back into the swing of things.  You never realize just how much you will miss something until you don't have it anymore.  I totally missed blogging, it is my way to get things off my chest.  To vent.  To bitch.  To express my feelings and not be judged...  I can't do that IRL as it tends to start fights and arguments with the people who live with me (that would be the in-laws not Randall or Kaylee).


I have mentioned that over the past month, Randall has been sick.  This wasn't a cold or flu sick.  This was in and out of the hospital sick.  This was I was totally scared shitless thinking that he was gonna die sick.  During this past month we found out that not only does Randall have diabetic gastroparesis, he was also diagnosed with Secondary Adrenal Insufficiency.  Which has totally scared me.  And after reading more about it, I wonder if he might have Addison's Disease...

I would go visit Randall in the hospital and try to be as strong as I could.  I would come home and break down in tears, when/if I could get a moment to myself.  I tried really hard to not show Kaylee how concerned I was.  I have told Randall that I wish it was ME that was so sick.  I wish I could trade and it be me who has to be poked and prodded and endure the extreme pain that he is constantly in.  He says no.  He says that he couldn't do what I have been doing.  I know that if the situation was reversed he would be doing exactly what I have done, PLUS some...

During this time, Randall lost his job.  We are not without income (thank God for the dispatching we do from the house) but things are tight.  Really tight.  I'm pinching pennies so hard that I'm making them squeak...  Added to this stress, it has not helped that his parents have no income of their own.  His dad sits and waits for his unemployment to start back up...  He's a slacker...

This has left me in a state of constant worry and panic.  I have panic attacks at the drop of a hat.  I have trouble sleeping at night.  I worry that this bill can't be paid or that bill can't be paid.  I am trying to have faith that everything will work out and be OK.  I just hope that I don't worry myself into the hospital...






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My Ponderings

2011 can suck it. (2) 4th Grade (1) 9/11 (1) A decade feels like forever but it is only a drop in the bucket of life. (1) A picture is worth a thousand words. (1) Acknowledge and let go. (1) And then my head exploded. (1) Arguing doesn't solve anything (1) Awkwardness (1) Back to School (3) Bad decisions (1) Being sick sucks. (2) Beyond the Cracks (1) Cancer can SUCK IT. (1) Cancer sucks for animals as well as humans. (1) Change is what you make it. (1) Choices (2) Consensus on twitter? I am not alone in my feelings. Heh. (1) Daddy (5) Daddy passed away from lung cancer 2 years later. (1) Decisions (3) Double Digits (1) Dreams (1) Driver2 really does have a crush on me. (1) Dysfunctional families (1) Embarrassed (1) Emotional scars heal but they still leave behind pain. (1) Facebook has let me down. (1) Farts are funny (2) Fireworks are AWESOME (1) Friendships Lost (1) Fuck you very much (1) Getting my days mixed up means I'm getting old. PFFFFFT. Whatever. (1) Guest Posting (2) HAPPY FOURTH OF JULY (2) Happy Birthday Daddy. (1) Happy Birthday Kaylee (1) Heart attacks are no joke. (1) Hidden away in a journal (1) I am not a Freaking FAIRY (1) I am the female version of Weird Al. (1) I did not feel this way being pregnant with Kaylee. (1) I don't like being mean but sometimes it's necessary. (1) I feel close to my sister again. (1) I get a kick out of irritating people. (1) I giggle at inappropriateness (1) I hate being accused of something I didn't do. (1) I hate when the tension is so thick you can cut it with a knife. (1) I have only been drunk once and No I didn't eat before hand. It wasn't pretty. (1) I just want to PEE IN PEACE. Is that so wrong? (1) I know I am WAY TOO LENIENT. I KNOW. (1) I like making things out of duct tape. (1) I look forward to June (1) I love Randall more than words (2) I love my family more than words can express. (1) I love twitter. (2) I married the man in this story on September 11th 1996. (1) I miss my sister (1) I need him as much if not more than what he needs me. (1) I realize now just how badly things COULD have turned out. Didn't think about it then. (1) I really wouldn't grab my doctors balls. But it's funny to think about. Isn't it? (1) I said 'fuck' a lot. Sorry. (1) I was a good girl once. Really. (1) I will not be treated like my opinion doesn't count ANYMORE (1) I will not win Parent of the Year for 2012. That's for sure. (1) I wish I had the guts to say all of this to my Mom. (1) I would never duct tape the kid but I HAVE thought about it. Heh. (1) I would rather be pissed off than pissed on. Hee hee. (1) If I'm my own rock does that make me Bipolar? NO OFFENSE TO ANYONE (1) If only life were as easy as it is in movies. (1) In my head (1) In the Moment (1) Insomnia sucks (4) It's no fun being in the ER (1) Jealousy (1) Karma (1) Kaylee was conceived BECAUSE of 9/11. (1) Kaylee will always be my baby no matter how old she is. (1) Less Than (1) Let me be. (1) Listen up 2012. . . I will have none of this suckass-ness already. (1) Living life in the PNW. (1) Living unfiltered (1) Looking for my sanity. Have you seen it? (1) Looking for my voice. Have you seen it? (1) Losing a parent when you are nine is hard. (1) M'mmm FOOD. (1) MOM? I'M BOOORRRREEEDDD. (2) May 10 2012 (1) Mom (4) Mom of the year here I come. (2) Motherhood (2) Mt. Rainier (1) My doctor? Also put me on a prenatal vitamin. I am not preggy. He said it's good for me. He might be nuts. (1) My feelings get hurt often. (1) My organizational skills are lacking. (2) Nisqually National Wildlife Refuge (1) No compassion (1) Not sure what caused the pain. Wonder if it was just stress? (1) Oh the places I'd go. (1) Only a Daydream (1) Organized Chaos (1) Pain in the Chest (1) Parenting (4) Parenting Fail (1) Parenting is hard yo. (1) Pretty sure the snooze button is the devil. (1) Questions from Kris (2) Quiet morning time is quite enjoyable. (1) Randall (46) Randomness from Me :) (32) Release The Krackens (1) Respect (1) Sad and Romantic (1) Salmon is still pink no matter what any man says (1) Save the Drama for your Mama. (1) Secret guilty pleasures are no longer secret. Heh. (1) Shadows of the Past (2) She dropped a bomb on me. (1) She is me. Obviously. (1) Sigh (6) Silence is golden. Then you remember you have kids. (1) Some people might be inclined to think she was being taken advantage of. She has considered this. (1) Some things make me feel really old (2) Sometimes smoke and mirrors are used to keep you from seeing the real me. (1) Somewhere along the way things changed (1) Sprouting boobies would be funny (1) Squeaky McSqueakerson (1) Ten Thought Tuesday (43) Ten Years Ago Today (1) That girl can SING (1) The Land of WA. (1) Things that make me laugh (2) Things that rattle around in my head (1) Thinking about giving up the whole blogging thing. . . Really. (1) This is a touchy subject. (1) This is not about Randall or Kaylee. (1) This is only part of the story. The other half belongs to Randall. I can only tell my part. (1) This post is WAY WAY longer than it should be. Sorry. (1) This time of year is hard for me. If I could I would crawl in a hole and hide until February. (1) This was one of the hardest things I have ever done (1) Thoughtfulness (2) Time will tell (1) Today is my Birthday. (1) Tootin' (1) Trying to heal from things of the past (1) Unexpected things (1) Used to love using the posties. . . Decided to use them today. (1) WTF? (1) We are still walking on the same path together. (1) We need some good around here right now. (1) What do you think? (1) What the fuck is wrong with me? (1) What would you do? (1) What? (1) Who daydreams about being old and gray? THIS CHICK DOES. What? (1) With Him (1) Wordless Wednesday (9) Writer's Workshop (8) Yes I DO shop at thrift stores. (1) You are dead to me if you don't like bacon. OK. Not really. (1) You might learn more than you want to about me (1) abortion (1) awkward (1) birthday (4) craziness (2) diabetes (4) distractions (1) duct tape crafts (1) family (40) fiction (1) funny (18) gastroparesis (13) growing up (10) healing (1) heart health (2) holidays (6) hookers (1) hospital (12) humor (3) irritation (2) kaylee (49) life (120) living with diabetes (3) love (22) me (17) memories (19) mental abuse (1) miscarriage (1) pondering (6) pour your heart out (10) prayer (4) pregnancy (1) ramble (7) random (18) remembrance (2) routines (1) sad (6) sadness (3) secondary adrenal insufficiency (3) sexual abuse (1) siblings (1) sickness (24) silliness (5) sisterhood (2) snarky (2) stress (9) the man here was three times older than me. (1) twitter (1) unexpected lessons (1)